Hey everyone! I just wanted to let everyone know that I am doing great now! I am disease free, and I am in no pain! I am getting a job soon! Oh and I took a course on phlebotomy, if you don't know what phlebotomy is, it is drawing blood. I would have never pursued this career if I hadn't gone through my diseases, A blessing in disguise in many ways. I will continue to go further in the medical Field, I love it! Thank you to everyone who put me in their prays and helped my family, I am so grateful! Love and Light Always!

~*SaRaH*~

Hey everyone! Merry Christmas!

I have been feeling pretty good for about 3 weeks! The reason why is because my doctors took me off of that crazy anti depressant, they put me back on steroids, and gave me a fentanyl patch for my pain. None of my doctors know why I am still in pain, they don't know what to do with me anymore but I am glad that I am feeling good right now.  I still have my bad days and don't really remember how it feels to feel normal, as my doctors ask me, I just tell them I don't know how to answer that. I don't know how long I will have to stay on steroids because my adrenal glands are abnormal, who knows I might be on them for the rest of my life :( I can handle it, and be strong, whateve

r happens happens.  My family is doing well and we all had a great Christmas! I got a camera, an Edgar Allen Poe book, money, popcorn machine, a few other things and lots of love!  Well I just wanted to let ev

eryone know how me and my family were doing. Take care, Love and Light always!  

I never had to have surgery for the air around my bowels, thank god! I did get to go on the roof with my family to see the fireworks! We were the only ones allowed up there, It was awesome. I love my Nurses and doctors! I did not have to have surgery. I think my bowels are fine now. I don't know if I can tell you everything that has been going on since it has been so long since I have written, and there is a reason for that. I have not been feeling to well, I don't know what is going on. I felt great for a while after the hospital and now my joints hurt, my head and neck hurts, my whole body aches and I am depressed. I thought about not telling the whole truth about what I am going through because I don't want anyone to worry, but it needs to be said for those who truly want to know exactly how it feels to be going through all of this. I am in therapy once a week now which is helping with my depression. But when I allowed my therapist to talk with one of my doctors, the one that per scribes me all of my drugs, things went a little down hill.  I guess the  both of them thought I was so depressed that they had to put me on the strongest depressant and have me stay on my current depressant. the depressants are paxal (the one I have been on for a few months) and Effexor (the strongest).  The first day I took this combination I felt like I was running around like a chicken with its head cut off and really happy. I went from having a hard time moving to caring heavy baskets of laundry up and down the stairs, cleaning my room bathroom and in no more than two hours. I couldn't stop moving, tapping, shaking, my brain going crazy. a few days latter the drug Effexor, that had three pages of side effects, started to take me down hill. I was in a hell I could not get out of. I don't know how to explain it but I felt like I was the most insane person in the world, in pain so much pain physically and emotionally. My mom called the doctors and they thought I was going suicidal on them. I didn't feel like I was going to kill myself because of my spirituality and family but if I was on that drug for one more day who knows what could have happened. This is the day after and I am still feeling a little crazy, the doctor said three days to get out of my system. for my pain they changed me from methadone (which was also making me crazy) to a patch. I can tell you right now it is not working very well. But anyways my mom and I will get it all handled our next visit and I will be fine. I just hope this is over soon, I want to be normal, I now, what is normal? to me normal is how I used to feel about 10 months ago. For now I will try to keep my head held high, be positive and soak inn the love that is all around me. I love you all and may god always be with you!

~*SaRaH*~

Result from C.T. Scan.

I went in for my C.T. scan and when the results came back everyone was freaking out because they could see air pockets in and around my bowels. Just in case, they had me stay in the hospital, but the weird thing is, is I am in no pain in my stomach. The surgeon came to see me and told me she thinks that it might go away on its own if we hook me up to an iv and take stronger antibiotics.  So hopefully no surgery. The cause of this might be because of the cmv or the steroids so it could be fixed easily. What I have is called pneumatosis.  I also have not eaten anything since 12 noon yesterday, and am not allowed to eat or drink at all today. I am going a little crazy. I really want to eat.  tomorrow I might be able to have some broth, mmmm. I am excited that we get to go up on the roof and watch the fireworks tonight and tomorrow night! I am also excited that I will probably be out of here at the end of this weekend! Love and Light Always!

~*SaRaH*~

CMV

Update. I have a virus in my blood called c.m.v. I am on a new drug for it that will hopefully help. I am at LDS Hospital right now waiting to go in for a ct scan. When I went in for my chest ex ray they found something in my stomach, so I am going to have the scan to see what it is. My doctor doesn't seem too worried about it. My stomach has been cramping up really bad when I am trying to sleep at night, I have been more tired, and my headaches are worse. I think some of those are from the new medication, but I believe everything will be fine. My chest ex rays are fine, and my caugh is gone. Love and Light Always!

~*SaRaH*~

Not much happenen!

Hey everyone, I know that a lot of you want me to write more but right now my life is pretty boring, as it should be. The doctors warned me that the healing process at home would be boring but if it is what I have to do to get better I will be bored for a while. There is one thing new that has happened, I have a cough and so I am going to the hospital tomorrow for a chest x-ray. I hope that everything is okay and not to serious. I am getting really sick of my steroids, they are making me pretty chunky but we are looking for an exercise bike.  Other than all of that I am doing really good, I think I am healing fast and can't wait to get back out into the world! I really love when people leave comments so feel free! Thank you all so much for your love and support!

~*SaRaH*~

It's me again!

Hey everyone, I just went for my 3rd checkup since I've been out of the hospital. I am doing great, my counts are up and I have not needed a blood or platelet transfusion since the day they let me out! My body is producing it all on its own! I am so happy! They said I am doing so well that they don't have to see me once a week anymore, I go back for my next check up in two weeks! I am so lucky that I am doing so well and I know it is mainly because of my special donor, my twin sis Chelsea! I love her so much! Oh also another great update, if everything goes well I will not have to wear my mask anymore once I am off my steroids. My last day is July 16, and the doctors told me that it would be 3 months after I was out of the hospital that I would be wearing that mask, but as you can see things have changed because I am progressing so fast! Thank you again everyone for being so supportive and loving it has really helped me along. 

~*SaRaH*~